Wednesday, November 30, 2005
Jeremy seemed very depressed today-but this is probably totally normal-I know that I'd be depressed. It was pointed out to me earlier that we have all had a lot more time to process everything going on than Jeremy has-he just kind of awakened half way through. He wants so badly to gain some independence and do things on his own. It is becoming increasingly obvious that this will be a terribly long process-and it's going to take the entire village to get it accomplished.
Thanks for bring there for this journey.
Tuesday, November 29, 2005
Jeremy is in a lot of pain and very tired. He's making sure we know it too. He said that someone had been constantly bothering him since surgery-and he was right. He's had X-rays and respiratory therapists, and nurses, and speech therapists-you name it. His nurse (Kim) told me that he just had to get some rest. We decided to leave and give him some quiet time (I could tell that he was thinking hard about a lot of things anyway). His nurse told me that she was going to give him a little "IV loving"-meaning that she was going to give a boost of pain medicine and hope he would go to sleep. Mom and Dad came home long enough to eat and then headed back down to see him again before bed.
If there is anything new to report tonight after I talk with Mom and Dad I'll get back on and make another post. Otherwise I'll just wait until tomorrow night.
Monday, November 28, 2005
It was nice to be able to talk with Jeremy tonight. He is very clear-in fact, I didn't see any of the strange side effects of medication. He passed his swallow test and was able to have a Coke-Hallelujah! The nurse told him for now that he had to be on a clear liquid diet-meaning you have to be able to see through it. Jeremy and I discussed the fact that beer is in fact "see-through" but decided it might really mess with his pain meds. :)
The test that they did on his stomach and gall bladder was also done-it was actually kind of an ultra-sound. It turned out to be just fine. His fever was down a bit today too. So, all things considered, he had a pretty good day. Hopefully he will get some sleep tonight and be well rested for tomorrow's adventure.
One of us will post information following surgery tomorrow. Keep your fingers and toes crossed and say a few prayers.
Sunday, November 27, 2005
He did get to see Madeline today-which was a big surprise-and called for some quick thinking on Mommy's part as I hadn't actually told her all of the details about his legs. We all thought that we had more time before this would happen. We actually had a decent talk about it in the car on the way to the hospital-and she had a funny look on her face-when I asked if she was OK she said yes, but that she was sad for Uncle Jeremy. We talked about the doctors making him new legs someday and the fact that he is still the Uncle Jeremy that she loves. The nurses say that he speaks of her constantly so they allowed him to come out in his big chair and see her for an extremely short amount of time. Hopefully, both Jeremy and Madeline realize that this won't be happening each time she is at the hospital-they just made an exception on a quiet Sunday morning. She, of course, played shy and was very quiet with him-but I think it did his heart good just to see her-and I think it helped her to realize that he really is still here. He's been shut behind those closed doors for 5 weeks now-that can be very strange to a four year old mind-it's strange to my 33 year old mind.
It sounds like the doctors will be doing a swallow test on Jeremy tomorrow-although we're not really sure how that will work when his jaw is wired shut. Hopefully this will show that he doesn't have difficulty swallowing and soon he can get a few sips of that Coke he wants so badly. The infectious disease team is also going to do some type of test on his stomach and gall bladder to see if that infection is hiding in one of those areas-so although he doesn't have surgery tomorrow it sounds like he will be busy.
I'll let you know tomorrow about the timeframe of Jeremy's surgery on Tuesday. Your prayers are working-keep it up.
Saturday, November 26, 2005
The medication is playing tricks on his mind and so he is spending a lot of time trying to differentiate between what is reality and what is not-for instance, he told me several times that he saw Madeline run by in the hallway-and even made me go check despite the fact that I told him that she was not there. Some of this confusion may stem from his high fever as well as the medication. He is uncomfortable and says that he is hungry. Mom is spending the night with him at the hospital tonight to ease his mind a little.
Some good things-he is totally off of the vent and the dialysis-they have even taken those wires out and removed the machines from the room. It has been easier to understand what he is saying-and when he is clear minded-he is very clear minded.
There will be surgery on Monday-I don't know details yet but will be sure to update tomorrow.
Friday, November 25, 2005
We noted that he sort of comes in and out of reality with his questions-he knows who we are but often seems to think he's at the hotel or needs to be working his shift. Other times he is perfectly clear and asks questions about what is around him. I'm sure that this has a lot to do with the pain killers, sedatives, and antibiotics that he has been on for weeks. Mom and Dad did try to talk with him some about what has happened-but it is unclear how much he was able to process and remember-we will probably have to go over it many times. When I left today he was sitting up and watching a Smallville DVD-he was uncomfortable but the nurses were coming to put him back in his bed. Mom and Dad stayed several more hours and felt that he was OK with them leaving and that he was in need of rest.
I'll be sure to update you again tomorrow-let's all pray for the fever to go down and the infection to go away.
Thursday, November 24, 2005
He was very alert and responsive today-which is good-but I can see and feel his frustration as he tries to communicate with us. He moved his arms around a lot today and seemed to attempt to gesture at things.
It was a long hard day-but I think it some ways it brought new meaning to Thanksgiving. We are so thankful that Jeremy is still here with us and seems to be taking steps to improvement-no matter how small. We are also thankful to you-his friends and family (and ours) for the support you are giving him in so many ways. Next year we will have so much to celebrate.
Sarah-and the entire Warriner Family
Wednesday, November 23, 2005
Several people have asked us what they should specifically pray for concerning Jeremy right now. I think my parents and I agree that what is most concerning to us right now is the infection that won't seem to let go. It is impeding everything that concerns his progress. Please pray for the doctors to be able to find and treat this infection-and that his body is able to heal.
Take care of each other over the holiday weekend and please be safe in your travels. I'll update more tomorrow.
Tuesday, November 22, 2005
Some positive things today-the doctor's seem to have found the source of Jeremy's infection and put him on an antibiotic that reacts to this infection late this afternoon. Jeremy has been off the vent all day. His trach is going to be replaced with a trach that will (eventually) allow him to speak. He has also been off dialysis because his kidneys have been producing a good amount of urine. They will be continuing to monitor this situation but we are certainly hoping that he will not have to go back on dialysis.
I met his orthopedic surgeon on the way out the door. She told me how badly she felt about his knee-but said that she still intends for him to be able to walk-it's just going to be much harder. She said that she's been told that Jeremy is a very determined man (I like to call it extremely stubborn) and thinks he will be a great rehab patient.
I think that's about it for today. I'll check in with you again tomorrow. Keep those prayers coming!
Monday, November 21, 2005
It is still our belief that Jeremy will know about his legs in the next couple of days. Please continue to pray that he will find the strength to deal with all of this information as well as for his physical healing.
Thank you so much.
Sunday, November 20, 2005
Here is the medical update. Surgery is still scheduled for tomorrow (Monday). This is an orthopedic surgery to shape the bones in his right leg and burn surgery-skin grafting with his own skin. Jeremy is second in line for surgery-tentatively scheduled around 12:00 but if you'll recall this is what we were told last week when his surgery didn't actually start until 4:30. He did spike a pretty high fever this afternoon (103 degrees). The good news in this is that the cultures have finally come back positive and hopefully by tomorrow they will be able to identify the bacteria that is causing the infection and find the appropriate antibiotic to treat it. For the time being he has been given the same "broad-spectrum" antibiotic that he was taking before.
Other good news is that Jeremy has been off the vent for almost two days. He does have a trach collar and there is some sort of oxygen mask that fits over the trach to assist him-but he is really breathing on his own. They will, of course, have to put him back on the vent for tomorrow's surgery but didn't seem to feel that it would be a problem to get him off again soon.
That is my news for now-please take a few minutes and send some good thoughts and prayers towards Jeremy as he heads into yet another surgery. Hopefully this will be the last major surgery. Probably by the end of this week-unfortunately nearing Thanksgiving-we will have to tell him all that has happened and about his legs. We (especially my mom and dad) could use some thoughts and prayers to get us through this too if you think of it.
As always, thanks for everything you are doing,
Saturday, November 19, 2005
The doctor's and nurse's-and our family- would like to remind people that we would love for you to come and visit in the waiting room, sign Jeremy's book, bring him CD's, and work on the quilt squares-but as much as we know you all want to see Jeremy he just gets too quickly agitated and tired out at this point when people come in. He tries to respond to people and when he gets frustrated everything shoots up-blood pressure, heart rate, rate of breathing, etc.
As soon as he is more stable and we are better able to communicate with him and he is able to communicate more with us about his wants and needs we will most certainly let you know and hope that you will come see him-although just one or two people at a time. You-his friends and family-are going to be an essential piece in his recovery and in dealing with the loss of his legs-I honestly believe that. He will need to know that you are still there for him and want to be around him regardless of the changes in his physical condition. I, personally, continue to be overwhelmed by the responses to these blogs and the cards and help we have been receiving from all of you. It is truly amazing to see how many lives Jeremy has touched throughout his thirty years. Thank you so much for continuing to share your thoughts. It means a lot.
I will try to get back on later this evening and tell you about today and any changes-big or small. Once again-so sorry I missed a day-I'll try to do better. :)
Thursday, November 17, 2005
Jeremy was alert again today. He continues to do well breathing on his own, but is still getting oxygen through the vent. His jaws will be wired for 2 more weeks, then the wires will be replaced with rubber bands for a few weeks. At that point, he will be able to talk with the help of a speaking valve.
Jeremy's kidneys seem to be functioning much better today and he was actually off the dialysis, although it is possible that he could back on it at some point.
Unfortunately, he still has an infection, and in fact, his fever was a little higher today. They are hoping to culture something specific since he’s off the antibiotic for now. But overall he was better today.
Let's pray this infection gets knocked out soon!
Wednesday, November 16, 2005
Tuesday, November 15, 2005
Monday, November 14, 2005
The doctor opted not to work on Jeremy's right leg tonight due to the potential of too much blood loss. His next surgery will be either Friday or Monday. In that surgery they will shape the right leg and hopefully do skin grafting of both legs (with his own skin this time). Dad called back just a few minutes ago and said that Jeremy is back in his room. They were going to go see him and then head home for tonight.
I believe that because Jeremy will be having more surgery after all that he will remain in the same type of sedated state that he has been in these past few days-with moments of alertness here and there but still very sedated.
As always we appreciate all of you sending your thoughts and prayers his way. Keep it up-he still has a long road ahead. One of us will update more tomorrow even if it's just to say it was a quiet day-that in itself is sometimes good news.
Sunday, November 13, 2005
Saturday, November 12, 2005
Friday, November 11, 2005
Friends of Jeremy's continue to make contact and visit with us. Cliff is here!!-good buddy of Jeremy's and of our family. I'm sure that just his presence will bring out the fight in Jeremy. We continue to be so thankful to all of Jeremy's friends and our family for the support you are giving us and him. What a great network! Take care-I'll post more soon.
Thursday, November 10, 2005
Surgery a success!
The have done a temporary graft to all the burn areas. Also, they have inserted a trach tube and a g-tube. The trach is an "acute trach", so he will not be able to talk while it is in. The drs. expect to have him off the vent (which is coming through the trach tube) within the next week. At that point, he will have a speaking valve to communicate. Remember, the trach is just temporary, until his jaws are healed.
Sarah had written the other day that Jeremy has been a little more responsive lately. Patty & Robb mentioned that to the doctors and they said for now, his sedation will only be increased if he seems to be in pain or is agitated. So, they anticipate Jeremy will be aware of eveything within the next week. He is not being kept in a drug-induced coma anymore.
I didn't ask Patty about Jeremy's fever/infection, and I will try to remember to do that next time (or maybe Sarah can answer that for us), but I'm hoping that the fact he is "very stable" is a sign that the infection is weakening.
I am so thankful for this good news! Let's pray the progress will continue!
Wednesday, November 09, 2005
9 pm Prayers for Jeremy
"The prayer of the righteous is powerful and effective."
Surgery scheduled for tomorrow (Thurs)
They have several goals for the surgery. One will be to repair his broken jaw. During this surgery, they will wire his jaw closed while his jaw heals. Because of this, they will need to do a tracheostomy. The trach tube will just be temporary -- I assume they will just need it until his jaws are healed. Jeremy will also need a g-tube (feeding tube) which is also temporary, and necessary because of the jaw surgery. Lastly, they will be doing temporary skin grafts. They won't be doing any orthopedic surgery tomorrow because the surgeon is out of town until Monday. So, the date for the follow-up orthopedic surgery isn't definite yet.
Let's all pray Jeremy will continue to be strong enough for surgery tomorrow, that it goes smoothly, and for strength and peace for Robb, Patty & Sarah.
Quilt Project and Guest Book for Jeremy
This also reminds me to mention Jeremy’s guest book. The guest book is in the waiting room and the family would be so appreciative if visitors would leave a note of encouragement for Jeremy in the book. If you’re able to visit the hospital more than once and have already left a note, feel free to just add an entry showing you were there that day.
Important Reminder about visiting the Burn Unit
Tuesday, November 08, 2005
Jeremy had an echocardiogram today-basically an ultrasound of his heart to rule out infection in the lining-the good news is that his heart is fine-and strong (but we all knew that didn't we :)? ) He also had a CAT scan of his stomach and intestines-they checked out fine as well. They changed a line that they thought had some bacteria attached and they also discovered a bit of a yeast infection in his lungs-but it is my understanding that the yeast infection is not the cause of everything else-however you probably shouldn't quote me on that. I think they started him on some type of anti-fungal medication to help clear this up.
When I was able to visit him this evening I thought he appeared to be more sedated and calm than yesterday-he did open his eyes here and there and moved his eyebrow a bit but mostly just seemed to be sleeping. Overall he appeared to be comfortable-at least I choose to believe that. At times he got a little too relaxed and his blood pressure seemed low-but nobody but me seemed to be overly concerned-I just poked him a little and teased about borrowing his DVD's and the blood pressure seemed to go up. (The big sister in me knows how to raise his blood pressure quickly when necessary!).
I will continue to update-hopefully with more uplifting news soon-I know I could use some. Thank you for your comments. I enjoy reading them and it makes me feel good to know that so many people care about and love Jeremy-I'm really quite impressed by him (but don't tell him I said that!). He will surely get a chance to read this all when he is ready and it will make him feel so good.
Go hug someone you love.
Monday, November 07, 2005
When Mom and I went back his eyes were open and he was blinking. As we started talking to him his blood pressure went up as well as his heart rate which kind of worried us but the nurses said they would let us know if we needed to leave. Mom did a good job of assuring him that he didn't need to try to talk to us and he just needed to rest. We stayed fairly quiet and held his hands and he seemed to calm some. The nurses really are taking such good care of him and we are thankful for that. We all agree that it must take a very special person to work in ICU.
As far as we know there are no surgeries scheduled for tomorrow. The facial surgery we assume is still on for Wednesday but I think that is a matter of the doctor's assements Wednesday morning as to whether it's a go or not. Not knowing the source of the infection and lack of kidney functions are still major concerns in Jeremy's world. We will continue to keep people updated as we are able-I think that with Colleen's help I can try to stay on top of it fairly regularly.
Thank you all so much for your prayers and kind thoughts. I know that it will mean so much to Jeremy when he is in a position to be able to read all of this. Don't forget to sign his book if you stop by the hospital. I'll be in touch.
Sarah (Jeremy's sister)
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Sunday, November 06, 2005
Visited with Jeremy's family today
Jeremy is still also on kidney dialysis, but the doctors are hoping it is temporary. They still don't know what has caused his kidneys to stop functioning, but apparently it can happen when a person has experienced this much trauma, including infections, etc.
At this point, they have tentatively scheduled leg surgery for tomorrow (Monday, 11/7/05). He will be evaluated this evening to determine whether he is stable enough for the surgery. His next surgery will be facial surgery and is scheduled for Wednesday.
The family appreciates so much all your support and prayers thus far, but as we know, Jeremy has a long recovery ahead of him and he will definitely need continuing support.
The Warriners also expressed that although we're all anxious to see Jeremy once he is taken off the sedatives, he may not be up for visitors, maybe even for some time. However, it will be so important that he knows so many others are praying for him and support and love him. You can send cards to Jeremy in c/o his parents. Also, please feel free to leave comments at this blog. Hopefully, maybe even while he's still in the hospital, Jeremy will be able to come to this site and read the comments.
We will make every effort to keep up-to-date information, while at the same time, trying not to bug the family too much by asking for that information. :-) Jeremy's sister, Sarah Moore, may also give updates from time to time.
A cousin to Jeremy,