Monday, September 28, 2009


Catching Up

I know, I've been bad about posting updates again. I have been extremely busy, but that's no excuse. The fact is that as my life becomes more "normal" I have a hard time coming up with things to talk about. What I forget, is that what is now "normal" to me is probably very different from what is "normal" for you. Over the past several months my life has become so involved with this Chrysler/GM bankruptcy mess that I forgot that there might be other things that you would find interesting. As a result, because not much is happening on that end, I've neglected to do an update for a while, so let me catch you up...

As I said, not much is happening in regards to the fight to get the pending cases against Chrysler and GM heard in court. That's not to say that nothing is happening, it's just very "behind the scenes" type of stuff right now. I can say that I've been in touch with several consumer groups and congressional offices, and we are moving forward, but at this point we're kind of in an information gathering phase. It's clear that niether Chrysler nor GM will do the right thing and accept responsibility for the pending claims, which means that the solution must come in the form of congressional legislation. In order to get any legislation passed we must be able to provide Congress with a comprehensive picture of who has been injured, how they've been injured, and what the financial impact is on the states in which we live. We're working on putting that picture together now. More on that in the coming weeks.

In the meantime I've been juggling appointments with my Prosthetist, visits with patients at the Wishard Hospital Burn Unit, and public speaking opportunities. For obvious reasons I can't really talk about my visits with patients at the hospital, other than to say that the experience has been helpful to me. It's also been really great to see the nursing staff that took care of me (when I was a patient) on a regular basis. Now that school is back in session I have several speeches at the IUPUI School of Education, and the University of Indianapolis Physical Therapy School on my calendar. I could spend time talking about the speeches, but it's mostly the same material. If something interesting comes up I'll be sure to fill you in. I will say this though, this Wednesday is going to be a crazy day!

I have an appointment with my Prosthetist in the morning, which will take several hours. After that I have an appointment with Indiana Vocational Rehabilitation, who is working with me in regards to future employment (this is one of those state resources, upon which I place a financial burden). After the Voc Rehab appointment I will head to UIndy where I will work with a class of Physical Therapy students. It will be a long and eventful day!

What probably would be of great interest to you is the work that I've been doing with my Prosthetist. We're in the process of changing my suspension system (the sockets that attach the prostheses to my legs) from a pin-lock system to a suction system. One of the biggest issues that I've had is that my left prosthetic leg, and sometimes my right, will start to rotate while I'm walking. This is caused by a combination of issues. Shrinkage of my residual limb, however slight, will cause my sockets to loosen. When that happens the prosthetic will start to spin around the pin, because that is the only point that the leg actually attaches to the liner on my residual limb. Other changes inside the socket that are caused by the force of walking also add to the rotation issue. Needless to say, it becomes quite uncomfortable to walk when the foot is facing the wrong direction and higher parts of the socket start to move toward my groin. (ouch)

The suction sockets will eliminate the pin and give the socket a connection to the liner all the way around my leg, which should also eliminate the rotation issue. The new sockets will also allow my Prosthetist to improve the alignment of my legs and hopefully give me more balance. I've already taken a few steps in the paralell bars without holding on to anything. It's very unsteady and looks goofy. Not sure that I'll ever become fully functional without at least one crutch, but it's something to hope for! The process of changing systems is long and, in this case, fairly drawn out.

First there was the "fitting", which happened about three weeks ago. The fitting required the Prosthetist to make a cast of each of my legs (residual limbs). There were some definite differences between how my old Prosthetist did a fitting, and how my new Prosthetist does them. First of all, my old Prosthetist did it differently every time. Sometimes he made a cast, sometimes he took a computer image, sometimes he just took measurements. The only thing that was consistent was that he always did these things while I was laying down, which never made any sense to me. Sure, at first, when I didn't have a leg to stand on there was no choice, but after I got my temporary legs, wouldn't it make sense to cast one leg while I was standing on the other? Which is exactly how the new Prostetist did it! Granted, it took a great deal of effort for me to stand in the paralell bars on one leg while he made a plaster cast of my residual limb, but that allowed him to get a cast of my leg in the position that it would need to be in for my prosthesis to work properly!

The next step was to try on the "check sockets", which happened about two weeks ago. Check sockets are clear plastic sockets that allow the Prosthetist to see where the pressure points are in the socket and make adjustments. The third step, which is entirely new to me, is a trial period, which started last Thursday. After making the adjustments to the check sockets my Prosthetist wrapped them in fiberglass to reinforce their strength. This allows me to take them home and practice with them for a little while. My old Prosthetist would just make the adjustments and then give me the permanent sockets. If there was a problem later that I wasn't aware of when I tried the check sockets on, then we'd have to start the process over again. The trial period has allowed me to figure out what I like about the sockets and what I don't like about them over time, so that when the permanent sockets are made we'll know that they are as perfect as possible. There are a few issues, which means more adjustments will need to be made, and I'll probably need another trial period after that, but the final product will be that much better! This Wednesday's appointment is the follow up to the first trial.

Now, before I go, there is something else that I've gotten involved in that I want to tell you about. As many of you know, the anniversary of my accident is now less than a month away. (Can it really be four years already!?) On the anniversay of my accident (Thursday, October 22nd) Easter Seals Crossroads, the organization that taught me to drive again, is holding a fund raiser called "Walk With Me". Easter Seals Crossroads provides many programs and services to the disability community that most people never think about. Early Interviention/First Steps (0-3 years of age), Children's Medical Rehab with Developmental, Physical, Occupational, and Speech therapies (3-18 years of age), Autism Services, Respite Services, Transition Services (high school and university levels), Driver Education and Training w/assistive technology, Low-vision in home services, Physician's Clinic (PM&R), Employment Services, Assistive Technology Services & INDATA Project, Augmentative Communication for children and adults, Deaf Community Services, and others.

As a result of difficult economic times many Easter Seals affilliates around the country are having to cut programming due to funding. As of yet Easter Seals Crossroads in Indianapolis has not cut any programs and we need to make certain that they don't have to! I've decided to take part in the fund raiser, which is a 2 mile walk across Butler University's campus. (Not sure that I'll walk the full 2 miles, but I'll definitely walk some of it, and then see if I can find a cute single lady to carry me the rest of the way!) I've created a team, Jeremy's Jedi, (couldn't resist the Star Wars reference!) to raise money for Easter Seals. This organization taught me how to drive again, which was a BIG STEP in regaining my independence, and that's why I want to support them. If you click on the team name it will take you to a site where you can either join my team, or make a donation. Please do not feel obligated. I'm doing this because it's an organization that has helped me tremendously and, as it is the anniversary of the accident, it will help me make something positive out of a day that holds such tragic memories.

So glad that you will be a part of the event, Jeremy! Hope to talk to you soon, Sara ;]
Thanks for everything you do, Jeremy. Your giving spirit is an inspiration to us all.

Wow...for not having much to say, you said a whole lot. The day to day stuff is what life is all about. We're happy you have day to day stuff. See you around at church...Saw you Sun. but I just didn't take time to say hello. So...when you see me, just know that a silent hello is coming your way.
Jeremy- Thanks for the update- I think you should take up consulting somehow in this area- you know what works for the patient and what doesn't.
I'm clicking on the link! Let's have coffee- Come west young man! Matt
Ya know all of this talk about your "legs" you should go work for the Military services. Simply because our service employee's who come back from wherever who don't have the use of their limbs could benefit from your teachings/learnings about how the legs, I'm serious...think about it. The stuff they do on you can help someone else down the road. It's at least good to look into for's a thought Jerm.
I'll most definitely click on the link and I might just join you on this little adventure around Butler.
But I do have to add for someone who has nothing to say you say it well...hahahaha....need to get the gang together again and play more cards before Annie forgets how...
Talk to you soon;
Love ya;
The Worleys are now signed up -- that oughtta boost your numbers :-D

We're proud to be part of the Jeremy's Jedi team and will be there with our light sabers...

Post a Comment

<< Home

This page is powered by Blogger. Isn't yours?